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My first post here. Tipping my toes into the water. I'm in my 8th year of being disabled by #mecfs. Interested in research and others with #mecfs and also #LongCovid.
@saminalberta
Unfortunately few things have helped me for more than a short time.
One of the best tools for optimizing my #mecfs has been pacing:
https://www.meaction.net/resource/pacing-and-management-guide/
@Bshuell Iim sorry to hear you haven’t found anything to help with symptoms- but I guess that seems to be pretty common. I’ve found pacing helps as well. Im not very good at limiting my activity, though, and I end up crashing often.
@Bshuell I’m also brand new to this platform. I’ve been living with #LongCOVID for 2.5 years and I have a #LongCovidKids daughter.
Have you found anything that has helped your #mecfs symptoms over the years? I hope you find this online space supportive & useful on your journey with #chronicillness.