Brian Shuell @Bshuell@social.cleverlibre.org
- @Bshuell
Husband, Father, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. #mecfs #pwme #longcovid #neisvoid
#MyalgicEncephalomyelitis #MyalgicE
Joined Nov 2022
Brian Shuell
boosted
I was struck by this comparison in this CNBC story on number of people with #LongCovid (16.3 million) versus 1.7 million with cancer a year.
But the NIH gives $6.4 Billion per year to cancer research and only gave $1.15 Billion to Long COVID (over 4 years). It’s not enough, especially when Long COVID could cost the US $3.7 trillion. 
This is my dog. She is also an advocate for #pwme, #mecfs , #LongCovid
Solve M.E. & Community Partners Denounce Misleading New York Magazine Article - Solve ME/CFS Initiative https://solvecfs.org/solve-m-e-community-partners-denounce-misleading-new-york-magazine-article/
@saminalberta
Unfortunately few things have helped me for more than a short time.
One of the best tools for optimizing my #mecfs has been pacing:
https://www.meaction.net/resource/pacing-and-management-guide/
For management of #mecfs and #longcovid, please consider pacing.
See the Pacing and Management Guide - #MEAction Network https://www.meaction.net/resource/pacing-and-management-guide/
My first post here. Tipping my toes into the water. I'm in my 8th year of being disabled by #mecfs. Interested in research and others with #mecfs and also #LongCovid.
@LongCovidAdvoc
Hopefully, on #mastodon, there will be progress made without the distractions of manufactured outrage from algorithms since we are no longer ourselves products being bought and sold.
- @Bshuell
Husband, Father, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. #mecfs #pwme #longcovid #neisvoid
#MyalgicEncephalomyelitis #MyalgicE
Joined Nov 2022
